Harrison’s Life with Duchenne Muscular Dystrophy on Instagram: "Is it any wonder? #duchennemusculardystrophy #Dmd #duchenneawareness #duchenne #parentinglife #parentcarer #wingingit #parentcarerwellbeing #courage #resilience #bravery"
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Harrison’s Life with Duchenne Muscular Dystrophy on Instagram: "Is it any wonder? #duchennemusculardystrophy #Dmd #duchenneawareness #duchenne #parentinglife #parentcarer #wingingit #parentcarerwellbeing #courage #resilience #bravery"
5.5K views4 months ago
Instagramharrison_and_duchenne
Harrison’s Life with Duchenne Muscular Dystrophy on Instagram: "Orthotics don’t always get the spotlight, but in Duchenne, they quietly do a lot of heavy lifting. From a parent’s point of view, orthotics aren’t about “fixing” anything, they’re about supporting what’s still working for as long as possible. They help with positioning, stability, and comfort as muscles weaken over time. Things like AFOs can support ankles and feet, help reduce falls, slow the development of tight muscles and contra
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Harrison’s Life with Duchenne Muscular Dystrophy on Instagram: "Orthotics don’t always get the spotlight, but in Duchenne, they quietly do a lot of heavy lifting. From a parent’s point of view, orthotics aren’t about “fixing” anything, they’re about supporting what’s still working for as long as possible. They help with positioning, stability, and comfort as muscles weaken over time. Things like AFOs can support ankles and feet, help reduce falls, slow the development of tight muscles and contra
3.6K views2 months ago
Instagramharrison_and_duchenne
Harrison’s Life with Duchenne Muscular Dystrophy on Instagram: "People often think Duchenne is “just” about losing the ability to walk. I wish that were true. My son can’t use his arms or legs anymore. Every movement you and I do without thinking - scratching an itch, adjusting a blanket, wiping your own face - he needs help with. Not sometimes. Every time. But what people don’t see is how Duchenne doesn’t stop there. Now it’s swallowing. Taking tiny bites. Watching closely so he doesn’t choke.
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Harrison’s Life with Duchenne Muscular Dystrophy on Instagram: "People often think Duchenne is “just” about losing the ability to walk. I wish that were true. My son can’t use his arms or legs anymore. Every movement you and I do without thinking - scratching an itch, adjusting a blanket, wiping your own face - he needs help with. Not sometimes. Every time. But what people don’t see is how Duchenne doesn’t stop there. Now it’s swallowing. Taking tiny bites. Watching closely so he doesn’t choke.
16.1K views2 months ago
Instagramharrison_and_duchenne
Being a Duchenne parent is wild because tell me why I have: • A mini pharmacy that lives on my bench. • The reflexes of a ninja when I need to adjust my son’s limbs and head to optimum comfort • And a sleep schedule that depends entirely on meds, Harrison’s skin pressure care and his fatigue levels. But please. Tell me again how I should “just relax.” Relax when? Between the meds, the physio, the respiratory treatments, medicine management, physical lifting, rolling and hoisting, the equipment c
0:12
Being a Duchenne parent is wild because tell me why I have: • A mini pharmacy that lives on my bench. • The reflexes of a ninja when I need to adjust my son’s limbs and head to optimum comfort • And a sleep schedule that depends entirely on meds, Harrison’s skin pressure care and his fatigue levels. But please. Tell me again how I should “just relax.” Relax when? Between the meds, the physio, the respiratory treatments, medicine management, physical lifting, rolling and hoisting, the equipment c
296 views1 month ago
TikTokharrisonandduchenne
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