Family Stories - Beyond Batten Disease Foundation
Family Stories - Beyond Batten Disease Foundation
Nov 21, 2019
beyondbatten.org
Hollywood Producer Fights to Save Daughters From Rare Disease
5:48
Hollywood Producer Fights to Save Daughters From Rare Disease
May 6, 2016
ABC NewsABC News
Batten Disease
Batten Disease
May 8, 2018
nationwidechildrens.org
7.5K views · 23 reactions | A gift in your will could unlock a future...
3:31
7.5K views · 23 reactions | A gift in your will could unlock a future...
7.5K views4 weeks ago
FacebookAction Medical Research
93K views · 712 reactions | #URMC's Dr. Erika Augustine became a pediatric neurologist to help individuals. She was drawn to research because each discovery moves scientists toward new therapies for large numbers of people facing devastating diseases. #3000researchers | UR Medicine | Facebook
2:15
93K views · 712 reactions | #URMC's Dr. Erika Augustine became a pedi…
93.9K views6 days ago
FacebookUR Medicine
Family fighting for cure after daughter's batten disease diagnosis
2:32
Family fighting for cure after daughter's batten disease diagnosis
6 months ago
CBS News
Batten disease: Fears drug treatment may be withdrawn
Batten disease: Fears drug treatment may be withdrawn
Jan 29, 2025
channel4.com
3:25
42K views · 794 reactions | Case study 70 - Prion disease AKA ma…
25.5K views1 week ago
FacebookDr. Betsy Grunch - Ladyspinedoc
6:36
86K views · 1K reactions | Case study 123 - Pott disease...
33.4K views3 weeks ago
FacebookDr. Betsy Grunch - Ladyspinedoc
1:26
“It’s Dr. Emily’s relentless effort to stop Batten disease in its tracks t…
57.6K viewsFeb 11, 2020
FacebookNationwide Children's Hospital
6:56
31K views · 18K reactions | Case Study 205 - Alzheimer’s Disease...
386.1K views6 days ago
FacebookDr. Betsy Grunch - Ladyspinedoc
4:21
What is Batten disease? Doctor and family share insights on rare cond…
11 months ago
MSNFOX 32 Chicago
4:07
4.6K views · 151 reactions | Before Enzyme treatment for CNL2 Batten...
4.7K views1 month ago
FacebookOllie's Army Battling Against Battens
Life-changing Batten disease drug gives hope to children affected by …
Jul 7, 2018
ABC NewsKathleen Calderwood
0:43
King's College London professor explains what Batten disease is
Nov 3, 2016
Mail Online
0:17
When Amelia was diagnosed with CNL2 Batten Disease at the age o…
6.6K viewsMar 28, 2020
FacebookOllie's Army Battling Against Battens
2:58
Ultra rare ‘one-in-eight billion’ genetic disease hits 3 Alberta sibli…
Jun 24, 2021
Global News
23:17
614K views · 14K reactions | Ellery is diagnosed with a progressive...
614.7K views1 week ago
FacebookSpecial Books by Special Kids
A new children's book is helping families talk about rare, fatal Batte…
Dec 3, 2022
ABC NewsKathleen Calderwood
2:40
Batten Disease: How a Batten Mother helps give back to the BDS…
1.5K views1 month ago
YouTubeBDSRA Foundation
0:19
Confronting the Challenges of Batten Disease
14.3K views4 months ago
TikTok_ollies_army
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Batten Disease Awareness: Sharing My Son's Journey
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TikTok.amandadensie
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Hope and Awareness for Batten Disease
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TikToklove.to.emma
Batten Disease....1st it steals the childhood and than it steals the ch…
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Understanding Gene Therapy for Battens Disease Progression
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OMG really!🙃 #fypシ #blountspatient #God'sWorkOfArt
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Child Battling One of the Rarest Fatal Diseases in the World
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Batten Disease Explained
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Surviving the Bataan Death March
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