A day in the life with Jeremy, one of our adults with Williams Syndrome. No one size fits all when it comes to Williams Syndrome! 💙#williamssyndromeawareness #wsaware | Williams Syndrome Association
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A day in the life with Jeremy, one of our adults with Williams Syndrome. No one size fits all when it comes to Williams Syndrome! 💙#williamssyndromeawareness #wsaware | Williams Syndrome Association
1.8K viewsMay 3, 2025
FacebookWilliams Syndrome Association
Caden’s Williams syndrome journey is just beginning. His diagnosis although understandably overwhelming, also brought a lot of clarity to his family. One thing about this community-is how we hold space and show up for each other. To all our families, we are here to support you every step of the way. 💙 🎥: @amandayayoi #williamssyndrome #heartmonth #williamssyndromeawareness #heartwarrior | Williams Syndrome Association
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Caden’s Williams syndrome journey is just beginning. His diagnosis although understandably overwhelming, also brought a lot of clarity to his family. One thing about this community-is how we hold space and show up for each other. To all our families, we are here to support you every step of the way. 💙 🎥: @amandayayoi #williamssyndrome #heartmonth #williamssyndromeawareness #heartwarrior | Williams Syndrome Association
5.2K views3 months ago
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✨It’s Rare Disease Day!✨ Let’s help spread the word and raise awareness for patients, families and carers around the world that are affected by a rare disease. We understand that for some people, the term “disease” implies that the condition might be contagious and for some it may have negative associations. However, sometimes it is necessary to use the term “rare disease” because it has widespread recognition. So, on this day, we join them and others in celebrating Rare Disease Day! – Thank you
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✨It’s Rare Disease Day!✨ Let’s help spread the word and raise awareness for patients, families and carers around the world that are affected by a rare disease. We understand that for some people, the term “disease” implies that the condition might be contagious and for some it may have negative associations. However, sometimes it is necessary to use the term “rare disease” because it has widespread recognition. So, on this day, we join them and others in celebrating Rare Disease Day! – Thank you
4.6K viewsFeb 29, 2024
FacebookWilliams Syndrome Association
For kids with Williams syndrome ages 0-5, the early years are crucial for intervention and support. At the WSA, we’re here to help families every step of the way: 🧸 Providing information on early intervention programs that use play to address developmental delays through physical, occupational, speech and music therapy. 📋 Guiding families through the process of creating an Individualized Education Program (IEP) - the roadmap for your child’s public education. 👩‍🏫 Sharing strategies that work
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For kids with Williams syndrome ages 0-5, the early years are crucial for intervention and support. At the WSA, we’re here to help families every step of the way: 🧸 Providing information on early intervention programs that use play to address developmental delays through physical, occupational, speech and music therapy. 📋 Guiding families through the process of creating an Individualized Education Program (IEP) - the roadmap for your child’s public education. 👩‍🏫 Sharing strategies that work
4.1K viewsMay 6, 2024
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No one size fits all when it comes to Williams Syndrome! Autumn and her dad, WSA Board President, William Palmer share their Sunday with us! Every person with Williams Syndrome brings their own stories, strengths, and individuality. ❤️ #williamssyndrome #williamssyndromeawareness #dualdiagnosis | Williams Syndrome Association
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No one size fits all when it comes to Williams Syndrome! Autumn and her dad, WSA Board President, William Palmer share their Sunday with us! Every person with Williams Syndrome brings their own stories, strengths, and individuality. ❤️ #williamssyndrome #williamssyndromeawareness #dualdiagnosis | Williams Syndrome Association
7.2K viewsMay 21, 2025
FacebookWilliams Syndrome Association
Why Should I Try Support Groups?
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Why Should I Try Support Groups?
384 views10 months ago
YouTubeWilliams Syndrome Association
BKASG - Adult Siblings Group
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BKASG - Adult Siblings Group
228 views7 months ago
YouTubeWilliams Syndrome Association
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Let’s be honest-fundraising can feel akward! The planning the posting the asking-it’s a lot. But here’s the truth: you don’t have to have experience or raise thousands. You just have to want to make a difference. ❤️ When you speak up for Williams syndrome awareness, you’re offering people a chance to make a difference. This is your sign to start. Your way, your voice, your impact. Let’s do this together! Click the link in our bio for more info on walks or how to set one up in your community! 🫶�
1.2K views11 months ago
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It’s easier than ever to join one of our support groups! Joel shares below the 3 different ways you can jump into one of our virtual support groups! 📲 ♥️ Check out the groups here on our fb page under events or click here to find a support group that meets your needs: Williams-syndrome.org/supportgroups #WilliamsSyndrome #familysupport | Williams Syndrome Association
1.5K views4 months ago
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𝐈𝐧𝐭𝐫𝐨𝐝𝐮𝐜𝐢𝐧𝐠 𝐭𝐡𝐞 𝐖𝐒𝐀 𝐒𝐨𝐜𝐢𝐚𝐥 𝐂𝐥𝐮𝐛! The WSA Social Club is your go-to hub for all virtual social and wellbeing programs for individuals with Williams syndrome—parents, caregivers, and siblings are always welcome too! All activities happen virtually on Zoom, from social hangouts to groups like Mindfulness Mondays and Wellness Wednesdays. View upcoming events and join anytime on the Social Club page at www.williams-syndrome.org/programs/wsasocialclub 📣 Big update: The Adve
2.4K views5 months ago
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When people say someone was the nicest guy ever, they’re usually exaggerating. In Jared’s case, it was an absolute fact. He genuinely cared for—and remembered—everyone he met, and when he flashed his beaming smile at you, it was impossible not to smile back.🫶🏼 Today would have been Jared’s 40th birthday. The Jared Glenn Memorial Fund at the Williams Syndrome Association helps ensure that Jared’s spirit of generosity and heroism lives on. This fund provides scholarships for families affected by
7.2K viewsFeb 13, 2025
FacebookWilliams Syndrome Association
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🌟 BIG ANNOUNCEMENT! 🌟 We’re thrilled to share that the 2028 WSA National Convention will be hosted in the Twin Cities, Minnesota, July 11–15, 2028! 🎉 The exciting news was announced at the Twin Cities Walk for Williams today by Minnesota Secretary of State Steve Simon and long-time WSA advocate Megan McNeil. Minnesota is ready to welcome our Williams syndrome community from across the country for connection, learning, and celebration. 💙❤️💚 BUT FIRST—get ready to join us next year in Buffalo
3.7K views8 months ago
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💙 Psst! #weekendforwilliams is tomorrow!! We’re calling on everyone to come together & support Williams Syndrome! There are ✌🏼ways to give (you can start now!): text WEEKEND to 71777 or visit weekendforwilliams.org where you can also get more info on where your support goes! 🎥: Special thank you to our Adventure Seekers! #weekendforwilliams #makemaymatter #giveback #williamssyndromeawareness | Williams Syndrome Association
2.9K viewsMay 30, 2025
FacebookWilliams Syndrome Association
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Williams Wednesday brought to you by Wilder. Brand new to this world and already capturing the hearts of everyone who meets him. As Wilder’s mom says: “We believe that God has blessed us with Wilder, not only as a gift but as our greatest teacher, guiding us in ways we never imagined.” We love you Wilder. ❤️ (Video by mom @jaggergirl ) #williamssyndrome #raregeneticdisorders #williamswednesday | Williams Syndrome Association
300.8K viewsJan 22, 2025
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Did you know Williams Syndrome is a rare genetic condition that affects 1 in 10,000 people worldwide, yet remains widely unknown? Are you following along with us as we continue to share & highlight our community to help bring awareness? 💙 (Credit:teambluelobster ) | Williams Syndrome Association
54.9K viewsFeb 3, 2024
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BKASG - Transition from High School
120 views10 months ago
YouTubeWilliams Syndrome Association
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Day 1 is here!! 🫶🏼🎉 All your beautiful faces are arriving & we are so excited for a week full of love, gratitude, friends, family, & lots of memories! Don’t forget to turn on notifications in the event app to keep up to date! Who’s excited to be here? Tag us #wsaphx2024 in your moments this week! 💚 #williamsyndrome #phoenixarizona | Williams Syndrome Association
3.5K viewsJul 9, 2024
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BKASG - 4 & Under Group
108 views10 months ago
YouTubeWilliams Syndrome Association
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BKASG - Dual Dx (Autism & WS)
221 views10 months ago
YouTubeWilliams Syndrome Association
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October 20 – Mindfulness Monday
630 views7 months ago
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