Please share this video and tag anyone connected to the White House so President Trump might see it. Sadie turns 10 on March 8. Instead of birthday presents, her wish is simple: a chance at life. Sadie has Sanfilippo syndrome, a progressive and fatal childhood dementia. A gene therapy that could help children like her has been delayed by the FDA twice. Administration leaders have said they want to accelerate access to rare disease treatments. But for families facing rapidly degenerative diseases
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Please share this video and tag anyone connected to the White Ho…
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