Centers of Excellence - National Organization for Rare Disorders
NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being. Our belief is that the NORD Rare Disease Centers of …
Rare Diseases Support, Resources & Help | NORD
Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts. Search NORD’s Organizational Database to find disease-specific patient advocacy …
What You Should Know About Undiagnosed Rare Diseases | NORD
NORD strongly recommends discussing options to participate in research with your doctor. Research can help identify new diseases, expand our understanding of known diseases, and potentially …
Rare Disease News - National Organization for Rare Disorders
Dec 18, 2025 · Stay informed with the latest rare disease research, breakthrough treatments, and patient stories from NORD's expert team of medical professionals.
Patient Organizations - National Organization for Rare Disorders
Representatives of patient organizations who are interested in listing an organization in the NORD’s Organizational Database (ODB) may contact NORD.
Patient Assistance Programs - National Organization for Rare Disorders
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial …
Phenylketonuria - Symptoms, Causes, Treatment | NORD
May 8, 2025 · Learn about Phenylketonuria, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources and
GNE Myopathy - Symptoms, Causes, Treatment | NORD
Jul 18, 2025 · Learn about GNE Myopathy, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources and
Citrullinemia Type 1 - Symptoms, Causes, Treatment | NORD
Apr 21, 2023 · Learn about Citrullinemia Type 1, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find
Complex Regional Pain Syndrome - NORD
Feb 8, 2023 · Acknowledgment NORD gratefully acknowledges Alexander Pham, NORD Editorial Intern from the Massachusetts College of Pharmacy and Health Sciences, and Stephen Bruehl, PhD, …