DEE refers to a group of severe epilepsies that include both seizures (often medication-resistant) and developmental delays. It can feel overwhelming to take in all this new information. Reading through …

Everyone’s seizure triggers will vary, so learning your child’s triggers is part of the DEE journey. Below is a list of common seizure triggers associated with DEEs. Please keep in mind that this list may not …

࡟ DEE is a term used to describe conditions in which developmental delay or impairment is caused by the underlying condition and the efects of frequent seizures.

Developmental and/or epileptic encephalopathy with spike-wave activation in sleep (D/EE-SWAS) is a childhood-onset epilepsy syndrome characterized by cognitive regression or stagnation and marked …

Early targeted intervention with treatment for people with DEE can improve seizure control and potentially cognitive outcomes.

DEE patients often exhibit gut dysbiosis and a subclinical state of chronic inflammation, which can affect their GI and neurological symptoms.

Nov 22, 2024 · This report reflects the DEE-P Connections' and Rare Epilepsy Network's account of the perspectives of patients and caregivers who participated in the Patient Listening Session with the FDA.